Jordan’s Story

Jordan Dykstra - photo by Jonathan Sielaff“As a type-1 diabetic of 19 years and counting, I was denied health insurance in my mid-20s because, back then, diabetes was considered a pre-existing condition. As a result, I ran out of insulin and supplies twice but was fortunate enough to receive excess meds and supplies from 2 diabetics that had recently passed away: an uncle and a friend’s loved one.

Let me be clear, to say that I was “fortunate” to live because another diabetic had died was no easy pill to swallow.

This cycle felt repressive, unsustainable, and inhumane.

Although universal health care for all citizens is the ONLY just direction for a contemporary society, if large sections of the Affordable Care Act–such as the pre-existing condition direction in Part 5–are repealed, I will undoubtedly be subject to the denial of health insurance resulting in the inability to receive care and medicine, and an avalanche of crippling debt. I beg you to help provide the citizens of America this basic right: the right to live.”

Your support of Universal Health Care Foundation of Connecticut helps make sure all people in our community have access to the care they need. 


Posted in From the Foundation

Lack of Congressional Action Threatens Children’s Health Coverage in Connecticut

Couple working in home office with baby

Federal funding for the Children’s Health Insurance Program (CHIP) expired at the end of September – and without reauthorization, this could mean major cuts to coverage for kids here in Connecticut and across the country.

How did we get here?  Historically CHIP has had bipartisan support in Congress.  A bill in the House did pass to fund CHIP. But it contained cuts to other health care programs that Democrats objected to. The Senate has yet to pass their own bill. Read more about the Congressional impasse that has prevented passing a CHIP funding.

Continue reading

Posted in From the Foundation | Tagged , ,

The Roller Coaster Ride Continues: Health Care Threatened by Tax Bill

By Jill Zorn

Amusement park ride..

With passage of the massive tax giveaway bill this past weekend, Congressional Republicans are making good on their promise to repeal the Affordable Care Act (ACA) – something they failed to do all year despite repeated attempts.

After the inauguration of Donald Trump in January, health care advocates thought that repeal of the ACA would be just a few months away.  We came up with a rallying cry early on, “No repeal without replace”.  This proved to be an important part of the strategy to combat repeal, because Congressional leaders and the president never actually had a workable idea for how to restructure health coverage if they killed the ACA.  Despite some flip-flopping by President Trump, Republicans seemed to buy in to the idea that they couldn’t repeal now and replace later-they would have to have an actual replacement plan in place.

Through the roller coaster ride of four Republican efforts to repeal the ACA this year, it was the replace part of the equation that always eluded them – they had no answers for what would happen to the millions of people losing coverage.

Continue reading

Posted in From the Foundation

Call to Action: Call Your Legislators About Cuts Impacting Low-Income Elderly & People With Disabilities

We’ve written about the Medicare Savings Program (MSP) cut (one of the various cuts to Medicaid in the 2018-2019 state budget).  The MSP cut will affect an estimated 113,000 low-income elderly and people with disabilities.

The cut has garnered press coverage and legislators may have a special session to address these cuts (See this article in the Hartford Courant, this article in CT News Junkie, and this report on WTNH News8).

Here is this action alert as a PDF, if you’d like to print and share with others: Printable MSP Action Alert.

So what can you do?  Read below!


Are you on Medicare?

Did you get a notice from DSS saying you are losing your Medicare Savings Program (MSP) benefits (QMB, SLMB, ALMB) in January 2018 due to a program change?


Do you KNOW someone who is on Medicare and was told they are losing their MSP benefits?

You should know this is happening because of drastic cuts in the state budget that was just passed by the legislature and signed by the Governor in October 2017.

Take Action!

Call your State Representative & State Senator!
And encourage others to call their State Representative & State Senator!

Let them know how the cuts to the Medicare Savings Program will impact you, or the people you know or work with.
Your calls and e-mails make a difference!

To find out who your State Representative and State Senator are please call:
Or go here to Find Your Legislator

Once you know who they are, you can contact them by calling or emailing them.

Not sure what to say, or how to start?

  • Start with your name and the town you live in.
  • Let them know you are calling about “the most recent cuts made to the Medicare Savings Program in the state budget that was just passed.”
  • Tell them how these cuts will impact your life directly, or the people you know or work with. For example:
    • If you no longer have coverage for your 20% Medicare co-pays for doctor or therapist visits, and so won’t be able to go to some or all of your doctors or therapists anymore, tell them that.
    • If you will no longer have coverage for the $1,340 Medicare hospital deductible, so you will face a large bill if you have to be hospitalized, tell them that.
    • If you will no longer have coverage for your Medicare Part B premiums (which range from $104 to $134/month), and so will have to drop that coverage, let them know that.
    • Tell them what kind of choices you will be forced to make because of these cuts, for example, having to choose between the high co-pays for an essential medical service vs. heating your home.
  • End your call by urging your legislator to quickly fix these cruel and unfair cuts to your health care coverage (or the health care coverage of your loved ones, friends, or those you work with).
Posted in From the Foundation | Tagged

Advocates Call for Action to Protect Consumers in Insurer/Hospital Disputes

In response to the recent stalemate between Anthem and Hartford HealthCare, legislators held an informational hearing to explore options for legislative action in 2018.

“This situation that happened this fall is the direct result of increased consolidation in the [health care] industry in our state.  That is something that our state has allowed to happen. And therefore, we believe that the state does have a responsibility to step up and mitigate these kind of situations happening in the future.”

Lynne Ide, Director of Program & Policy at the Foundation, said this at yesterday’s public hearing about the Anthem & Hartford HealthCare dispute.  She is one of the first speakers on this WTNH News8 clip on the hearing. Continue reading

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Your support makes a difference

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Access to quality health care makes a big difference to people in our community. People like Lorelei, Michel and Tay  have received the care they need at an affordable price – changing their lives.

But what if this care wasn’t available?

What if Lorelei was unable to receive the treatment needed to keep her out of constant pain? What if Michel had not received the cancer treatments that saved his life? What if Tay was forced to live in a skilled nursing facility?

The Universal Health Care Foundation of Connecticut is unwavering in our commitment to ensure access to affordable, equitable health care for every person in our community.

Your support this Giving Tuesday helps ensure your family, friends, and neighbors have access to quality affordable care when they need it.

We can’t do this work without you! Please donate today.

Posted in From the Foundation

Lorelei’s Story

“My daughter, Lorelei, loved to play dress-up, Irish stepdance, and watch Barney the purple dinosaur.”


Then at age fourteen, she began experiencing intermittent and mysterious bouts of pain. We knew it was serious when she called out to us in the middle of the night from her bed – “I can’t move” she said. The pain was immense and paralyzing.

Eventually, Lorelei was diagnosed with juvenile rheumatoid arthritis.

Her chronic condition is managed through infusion treatments every six weeks. If Lorelei could not afford treatments, she could not complete basic daily tasks. She would be unable to live her dream and have a productive life. Instead, she’d be suffering from the pain and debilitation.

Your support of the Universal Health Care Foundation of Connecticut helps make sure these treatments continue to be available and affordable.

Now, 23 years old, Lorelei is in college and working toward fulfilling her dream to become a registered dietician.

“Lorelei is probably one of the most courageous people I know. She never gives up. She has the biggest heart – she gets people,” Lorelei’s mom says with tears in her eyes.


Posted in From the Foundation